For patients · Medication guide

Belimumab

anti-BLyS, Benlysta

Are you a clinician? See the clinical version of this page.

The short versionBelimumab is a targeted biologic medicine for lupus. It blocks a signal that keeps certain immune cells (B cells) overactive, which lowers lupus activity and helps prevent flares. It is added to standard lupus treatment and is also used when lupus affects the kidneys.
How you take it

Given either as a drip into a vein (dose based on your weight, spaced out to every 4 weeks) or as a weekly injection under the skin. Tell your team about low mood or thoughts of self-harm, which have rarely been reported.

Tests while you take it

Report signs of infection, and any new or worsening depression, anxiety, or thoughts of self-harm.

What to know

How it is used in lupus

Belimumab is added on top of the usual lupus medicines to lower disease activity and reduce flares, and it is one of the options used when lupus affects the kidneys.

Common side effects

The more common effects are reactions around the infusion or injection and a higher chance of infections. Some people notice mood changes, so your team will ask about your mood.

Tests and monitoring

Your team will check in about your mood, because new or worsening low mood or thoughts of self-harm have been reported with this medicine. Tell someone straight away if you notice these.

Before you start

As with other medicines that lower the immune system, your team will usually check for hepatitis B, tuberculosis, and HIV before you begin, and make sure your vaccines are up to date.

Important cautions

There is less information about belimumab in pregnancy, so the decision is made with you case by case. Your reviewed pregnancy guidance is on the separate pregnancy page. Live vaccines are generally not given while on this medicine.

+Planning a pregnancy? This medicine has separate, reviewed reproductive-health guidance. See the pregnancy guide for this medicine.
iThis page helps you prepare a conversation with your care team. It does not replace individual medical advice. Always confirm your own plan with your rheumatology team.
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What to watch for