For patients

Dermatomyositis and inflammatory myopathies

dermatomyositis, polymyositis, idiopathic inflammatory myopathy, IIM, myositis

Are you a clinician? See the clinical version of this page.

The short versionPregnancy tends to go best when myositis has been in remission for several months and is controlled on pregnancy-compatible medicines. Active muscle inflammation at the start of pregnancy carries more risk, so planning ahead really matters. Care is shared with a high-risk pregnancy team.

What to know

Plan around remission

Aim to conceive after myositis has been quiet for several months on medicines that suit pregnancy. This gives the best chance of a smooth pregnancy.

Will myositis affect the pregnancy?

When disease is active, there is a higher chance of miscarriage, early birth, and a smaller baby. When it is well controlled, outcomes are much better.

Will pregnancy affect my myositis?

Myositis can be active, or first appear, during pregnancy or after birth, so you are watched closely, including muscle strength, skin, swallowing, and breathing.

Delivery planning

If muscle strength is affected, your team plans the safest way to give birth. A planned caesarean is sometimes chosen to avoid muscle strain during labour.

Medicines

Hydroxychloroquine helps the skin and is continued. Azathioprine and steroids can be used. Some strong medicines are stopped before pregnancy. IVIG is an option for flares.

Antibody testing

Some people with myositis also carry anti-Ro/SSA antibodies, which have their own monitoring, so your team may test for them.

iThis page helps you prepare a conversation with your care team. It does not replace individual medical advice. Always confirm your own plan with your rheumatology and pregnancy team.
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